Completed Research Project

The Social Impact of Caring for Terminally Ill People

Investigators: Kristjanson L, Aoun S.

Funding:  Palliative Care Australia ($40,000)

Abstract: Palliative Care Australia launched the National Inquiry into the Social Impact of Caring for Terminally Ill People in mid 2003 to gather policy, opinion, experience and research related to the social impact of unpaid caring for the terminally ill. The National Inquiry project consisted of two parts:

  • a review of the literature to highlight the contribution made by unpaid carers to Australian society, to investigate the impact of caring on their lives and the challenges and difficulties they face
  • an analysis of the public submissions from individual carers and/or their support organisations or service providers.

The report points to a range of initiatives and reforms designed to increase support to caregivers and thus decrease the negative individual and social impacts of caring for dying people in Australia.