Completed Research Project
National analysis of the palliative and supportive care needs of families whose children die from cancer
Investigators: Monterosso,
L.,
Kristjanson,
L. J., Yates, P., Sawyer, S., Hynson, S., Phillips,
P., Collins, J., Currow, J., White, K., Alessandri,
A., O'Riordan, E., & Roder, D.
Funding: NHMRC ($65,000) and Department of Health & Ageing
($20,000).
Abstract: Preliminary empirical findings from our study provide specific guidelines for the broad delivery of both palliative and supportive care, particularly for this population. We have recommended the development of a service model that is focused on the provision of home care that is individualised, responsive to children’s and parents’ needs, and accessible to all families of WA. The service should be receptive to provision of in-home respite support and designated respite beds, and have the potential to cater for longer-term care support and end-of-life care. Preliminary discussions have been held with the Health Department of WA who are committed to the development of a statewide paediatric palliative and supportive care services, based on findings from this project. The project was completed in April 2005.
